One Year Later - Strength Comparison

CK Down Again

CK is 252 (38-234 is normal)

2 Years ago it was around 8,000

Now we can start tapering the 10mg Prednisone and hopefully get off it altogether.

One Year Later

As one year has past since my treatment, I can only look back in amazement at how much has changed. I not only have regained strength, energy, and independence, but rediscovered happiness.

One year ago, I was struggling to get off the ground, could barely make it off a chair or up the stairs. I could not lift my neck, cross my legs, put my arms over my head, lift my son, walk without a stick, or go through a day without a nap.

Today I can do all of those things and more. I have jumped back into life and our big news is, after 2 years of waiting, our daughter has finally joined our family. We traveled to Ethiopia to bring her home in late July. Yes, I traveled and all was fine. She is proof that anything is possible if you don't give up.

Thank you to the family, friends, and strangers who helped me through. All is not perfect, but little by little we are getting there. When you lose so much, gaining anything at all seems like a miracle.

Please pass along this treatment to others who are suffering with auto-immune conditions to see if they qualify.

Cheers to a Happy Holiday season and a Healthy New Year!

Normal

Closer to normal once again..
CK is down again to 306! (Normal is 38-234).
Still noticing small changes in strength. Bending from the waist to touch the floor and up without pushing off legs. Pulling Graham in the bike trailer, carrying baby and groceries up the stairs...."yes we can"...

July CPK

Down again to 429 now! Every month things are normalizing- well for CK that is=)
Normal is 38-234.

Vaccination Update

Today I got my titer results back and found out that all the travel vaccinations I had done before HiCy are still in my system and giving me immunity. This is great news and means I do not need to be re-vaccinated!

Down Again

CK is still moving down...537!