Tuesday, January 22, 2013

“If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr.

Wednesday, January 16, 2013

A Thing of the Past

Still in remission and staying active.   =)

Wednesday, January 12, 2011

In Remission/Off Meds

I can officially report that I am off Prednisone and am still in remission since my HiCy treatment 2 years ago.
I have recovered a remarkable amount of muscle strength and continue to target the areas where the most damage occurred- hamstrings and glutes.
I am so thankful for the quality doctors and care I received at Hopkins. Myositis patients now have one more option for treatment.

Saturday, August 7, 2010


After many failed attemps, I finally discovered a system of holding on with one hand and pushing off one thigh to tuck and get vertical. I was yelling and laughing so hard I fell soon after.

Friday, April 9, 2010

On the slopes

I went down-hill skiing in March! I cannot express with words how wonderful it was to go fast at something, anything...going fast is something this thrill-seeker stuck in first gear has surely missed. I was a little awkward walking in the boots, but then after a few runs, muscles loosened up and I was doing the blue trails!

Thursday, January 14, 2010


CK is down a bit more and I am officially in the normal range at 224.
I have not seen a lab printout without an H for High next to CK in 3 1/2 years.

Tuesday, December 1, 2009