Down again to 429 now! Every month things are normalizing- well for CK that is=)
Normal is 38-234.
Monday, July 27, 2009
Thursday, July 16, 2009
Vaccination Update
Today I got my titer results back and found out that all the travel vaccinations I had done before HiCy are still in my system and giving me immunity. This is great news and means I do not need to be re-vaccinated!
Thursday, July 9, 2009
Monday, June 1, 2009
CK Steadily Down
CK was 613 for May which is down a little from last month. It isn't moving fast, but it is still moving which is good. I am still at 10mg of Prednisone a day and we are going to discuss how long I will stay there at my next appointment. I am not too anxious to change anything up until I am officially in the "normal" range.
I am happy to say I made it through a few Spin classes and find that it helps to have loud music and someone making me push myself just a little bit more. Working out sure isn't what it used to be, but with good friends around it is at least bearable. Our YMCA is like family. I was looking into this raw vegan protein powder that I think would be beneficial for the muscles after a workout. I am still juicing during the day, wheatgrass and a green juice (kale, celery, parsley, cucumber, ginger). I am not crazy with being restrictive about foods, but I do now know what is acidic, what has sugar, etc. and try to eat smart. I have found a nice balance of not intellectualizing food and actually enjoying it now.
Not running yet and I am not sure if that will ever happen. It frustrates Graham which in turn saddens me because there isn't anything more I would want to do than run with my son. He tries to understand in whatever way a 5 year old can, and I try not to say too much to him and stay positive. I tell him that I never give up and we are going to train together and who knows what can happen in a few years. Who knows what the future of science will hold. I will zap some muscle-head's bicep into my hamstrings- sure- I will see if it works if it means I can run. So for now I do a nice slow plod, a few paces and back to walking.
Luckily I can keep up with many other things. I am especially proud about how my karate kick is high once again, walking is steady, I can pick up things easily, I lifted a 50 lb bag of mortar the other day, I can dance, and I can raise my leg over logs on trails or babygates.
ahh I'll take whatever this body will give....
I am happy to say I made it through a few Spin classes and find that it helps to have loud music and someone making me push myself just a little bit more. Working out sure isn't what it used to be, but with good friends around it is at least bearable. Our YMCA is like family. I was looking into this raw vegan protein powder that I think would be beneficial for the muscles after a workout. I am still juicing during the day, wheatgrass and a green juice (kale, celery, parsley, cucumber, ginger). I am not crazy with being restrictive about foods, but I do now know what is acidic, what has sugar, etc. and try to eat smart. I have found a nice balance of not intellectualizing food and actually enjoying it now.
Not running yet and I am not sure if that will ever happen. It frustrates Graham which in turn saddens me because there isn't anything more I would want to do than run with my son. He tries to understand in whatever way a 5 year old can, and I try not to say too much to him and stay positive. I tell him that I never give up and we are going to train together and who knows what can happen in a few years. Who knows what the future of science will hold. I will zap some muscle-head's bicep into my hamstrings- sure- I will see if it works if it means I can run. So for now I do a nice slow plod, a few paces and back to walking.
Luckily I can keep up with many other things. I am especially proud about how my karate kick is high once again, walking is steady, I can pick up things easily, I lifted a 50 lb bag of mortar the other day, I can dance, and I can raise my leg over logs on trails or babygates.
ahh I'll take whatever this body will give....
Monday, May 11, 2009
Amazing New Muscle
Something clicked this month and I am able to do so many new things. ...
I can bend over and back up with legs straight. I don't have to do the funky tuck thing with my legs bent.
I can lift my head from lying position! This has always been my most challenging thing.
I can extend my leg out when on all fours.
When sitting, I can lift my knees up and actually clear the table.
I am amazed at how the body can heal. I am so thankful and so happy to be back!
My good friend with MS is going to do HiCy in Chicago soon. We can't wait to watch her progress!
I can bend over and back up with legs straight. I don't have to do the funky tuck thing with my legs bent.
I can lift my head from lying position! This has always been my most challenging thing.
I can extend my leg out when on all fours.
When sitting, I can lift my knees up and actually clear the table.
I am amazed at how the body can heal. I am so thankful and so happy to be back!
My good friend with MS is going to do HiCy in Chicago soon. We can't wait to watch her progress!
Tuesday, April 7, 2009
Wednesday, March 25, 2009
March CPK
CK is down to 660 now!
Shingles doesn't seem to have triggered anything!
Yay.....Whoopie.....Yeehawwwwww!
Shingles doesn't seem to have triggered anything!
Yay.....Whoopie.....Yeehawwwwww!
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